Challenges in implementing the Ethical Norms in Research on Autistic Children in the Indian Context
Abstract: Human subjects are used in numerous research experiments, clinical or non clinical, which involves collection of data from them and later, analysis of data. The participants are exposed to primary risk of the research when the researcher attempts to collect, use and apply information accessed from the participants. This makes ethics in research a very vital subject while conducting research in human subjects.
Research with children adds more dimensions to ethical norms where permission from parents / guardians are also required. Further, research on children with special needs intensifies the vulnerability and protecting their rights and welfare must be strictly applied.
This paper looks into the issues on conducting research on autistic children. The intermingling of ethical principles, participants rights, research goals, socio-cultural context and working with very vulnerable special population brings out crucial issues for the researcher on implementing the ethical goals, which are discussed in the present study.
This paper aims at identifying the challenges
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Clinical based studies in human subject involve investigation and analysis of biological specimens, epidemiological and behavioral studies and medical chart review studies. In non clinical studies, investigation may be in the form of surveys, questionnaires, interviews, and focus groups. In fact, without human subjects, developments in medical science or social science will be drastically impaired. However, the participants are exposed to primary risk of the research when the researcher attempts to collect, use and apply information accessed from the participants. This makes ethics in research a very vital subject while conducting research in human