The Immortal Life Of Henrietta Lacks By Rebecca Skloot

1996 Words8 Pages

This nonfiction book The Immortal life of Henrietta Lacks was written by Rebecca Skloot. Skloot gives us a glimpse of the life of a young African American woman Henrietta Lacks as she briefly went through the healthcare system with cervical cancer in the 1950s. While Henrietta is the main character of this book, Skloot also highlighted the racial disparities in the healthcare sector and other industries at the time and painting a vivid picture of dying communities and the struggles of the descendants of Henrietta Lacks. Although, a lot of the book is about Henrietta Lacks, it is also about her daughter Deborah learning more about her mother and finding out the truth about her aunt Elsie. Henrietta was a mother of five who sort medical attention …show more content…

And although, these privacy protections did not cover genetic information, 12 years later congress passed the Genetic Information Nondiscrimination Act (GINA) to fill the gap. (Stump) The National Institute of Health’s (NIH) now requires strict ethical standards including informed consent from all researchers seeking funding. These are steps in the right direction but just like anyone working in the medical field would tell you, there is still more to be done to ensure complete patient privacy and informed consent is the norm in every branch within the medical community. Whereas it took many years for the medical community to acknowledge the violations and origin of Henrietta’s cells it reassuring to see the progress that has been made to stamp out bad ethical behaviors. In the United States today, ethical requirements now include non-maleficence, (not harming), beneficence (benefiting or doing good); autonomy (the patient has the right to choose or refuse medical treatment); and, justice (patients are treated impartially, without bias on account of gender, race, sexuality and wealth). Also reassuring is that a lot of effort is being made to safeguard the interest of Henrietta’s descendants and as a result, all NIH funded research on HeLa cells can only be published with the approval from a board that includes two of her