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Consent And Money Related Tissue Research

608 Words3 Pages

Yes people should have ownership and control over where and how their tissue is being used. It is my body and if you are going to take something from me, I want to know what you are going to use it for. If it is research, I want to know what type and if it is for potential medical discoveries, I want to be compensated for my “donation”. It is not just knowing that my tissues could be used for medical research. It is having a say as to where my tissue is being studied. I have personal beliefs and I don’t want my beliefs compromised just because of research. In The Immortal Life of Henrietta Lacks, it states, “it is important for donors to be able to control who has access to their tissues, because they worry that information gathered from tissue samples might be used against …show more content…

Currently there are no laws on whether or not people should be given legal ownership of, and/or control over, their tissues. What is up for discussion is consent and money related to tissue research. For some knowing how their tissues are being used is more important than the money. Consent allows the patient to decide who and where the tissues are being given to and how they are being studied. Some people have religious beliefs, which may prevent some medical institutions from using them. Others want to know that the tissue taken from them is helping others and feel that they should be compensated for the “trouble” of having the tissue removed. Tissue research is commercialized and because of that, doctors should be required to tell patients that their tissue may provide a profit. “Estimates say one human body can

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The only problem is the patient never knew that he was going to take the cells and sell them to make profit. Since the doctor took it without him knowing it and since the patient never got any money from the cells it has caused huge debate on whether or not the cells are still property of the person after they leave your body. The court in this case ruled that the patient gets control over his cells and tissues whether they can use them or not (Skloot, 2010). Then the doctor appealed saying this that when they leave your body and are in the hands of the doctor then they own the right of your cells (ANNAS, 1990). This leads to me say that I feel that the cells are each patient’s property unless them give them to some else with consent.

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Should the doctors be able to have done this without her consent? Rebecca Skloot wrote the book The Immortal Life of Henrietta Lacks to talk about this in more depth. These doctors took her cells, and used them for research and

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The court said doctors said researchers should disclose financial interests in patient tissues”(Skloot 205).

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Patient care is based around the individual- their best interest, treatment, and health concerns. Research is based around furthering knowledge within the medical world, by testing on people, and improving lives for future patients. In Henrietta’s case, she went to John Hopkins with the plan of being treated as a patient only, and was used for research, without education or consent. Making only a small effort to relieve her pain through radiation treatment, the physicians removed cells from Henrietta’s cervix to use in later studies. There is another line blurred, as Spigner, a University of Washington professor makes a point, stating, “The life and death of Henrietta Lacks is a cautionary tale that reflects the inherent contradiction between the stated purpose of medical research to provide benefit to humankind and the reality of blatant profiteering in the name of the advancement of science” (12).

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Immortal Henrietta Informed consent is an ethically important aspect of medical care; patients must be fully informed of any and all possible risks and benefits from receiving medical treatment, participating in medical research as a subject, or donating live tissues to be studied. Only after receiving and understanding all of the necessary information can a patient give consent; if the patient does not consent, for whatever reason, then it is both illegal and unethical to follow through with treatment, research, or taking samples (O’Neill, 2003). However, particularly in regard to taking tissue samples, some doctors seem to think that what the patient doesn’t know won’t hurt them. One example of this is Henrietta Lacks and HeLa cells.

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“The historic dream of public health…is a dream of social justice” (Health Affairs, Vol. 25, Number 4). In the story of Henrietta Lacks, it is hard to say that the use of her cervical tissue is ethical, because it is not. Henrietta was diagnosed with cervical cancer and Dr. Gey decided to isolate those cells. When he found that these cells could grow in a culture medium and last, he shared them with the world of science.

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The story of Henrietta Lacks is one of great ethical weight. I believe that no one sought out the consent or permission of the use of Henrietta Lack’s cells from herself and her family because of the breakthrough that they would make in the medical field. I believe the researchers and doctors felt that by obtaining these live cells, they could be helping millions and did not really think to the extent of asking for permission. They most likely had a vision for the use of these cells and asking for the permission from the patient themselves or even their families wasn't a thought that came to mind. Furthermore, during the time period in which the medical field was in at the time of the obtaining of Henrietta’s cells, there were no laws or set

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Finally, who should decide how much something like tissues is worth? Questions like these could take time to answer, time that scientific advancement doesn’t

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