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Multiple Sclerosis patient experience
Multiple Sclerosis patient experience
Multiple Sclerosis patient experience
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In “Am I MS?” Miriamne Ara Krummel talks about her personal journey she endured dealing with multiple sclerosis. Krummel further explains at the end how she was finally able to accept her diagnosis and to embrace it. She finds that it’s important to be open about the disease. She believes that, “it might be helpful if more people would talk about death and dying as an intrinsic part of life” (76-77).When she was first diagnosed, she had a difficult time coping with MS.
In the essay, “Carnal Acts”, Nancy Mairs speaks about the difficulties of coping with MS and how her voice as a writer helped her through it. At first, she has difficulty making a connection between dealing with multiple sclerosis and how she discovered her voice as a writer. After deliberating for weeks about the connection between these two very different aspects in her life she gets to the realization that they are connected. She first describes the difficulties of dealing with MS and societies perception of a woman with a disability. Then she talks about the struggle of coping with the shame she feels about herself.
Terry Fox showed the world what a disabled person could do, and that was anything he put his mind to. As can be seen, his disability did not define who he was; instead, it made him
Even though she was diagnosed with Multiple Sclerosis, she is still able to have the strength to achieve anything that is possible to her. Because of having MS, the unpredictable course of the disease were terrifying to her. Each night she would get into bed wondering whether she will ever get out again the next morning. Whether she be able to see, speak, to hold a pen between, knowing that one day might come. With the horrible situation in Nancy's life she had the strength to overcome any obstacle.
While doing so, Mairs uses logic, humor, and an optimistic tone to break the societal attitude towards people with disabilities, portraying her success and the positivity throughout her life with multiple
Murderball Autumn Ruffini Central Michigan University RPL 110: Exp of Disability and Soc Marginalization Shay Dawson May 10, 2023 Murderball Watching Murderball, the documentary by Henry Alex Rubin and Dana Adam Shapiro opens your eyes. While this documentary proves everyone’s stereotypes wrong and helps build people with a physical disabilities character. It proves to many people that physically disabled people aren’t just tied to a chair like a prison they can escape and do what they never though was possible. Stigma/Marginalization I think that this documentary fights against stigma / social marginalization.
Her carefully chosen words she uses to explain her condition is not to get the reader to sympathize with her, but to have deeper sense of what she is going through, and what people like her go through. She also uses pathos effectively when she talks about how “you can’t always get what you want” and adds “particularly when you have MS” (37). By talking about a serious disease that she believes cannot be cured, it grips at the readers’ despairing emotions, causing the reader to feel a deeper connection with her. Mairs
n Nancy Mairs essay, “Disability”, she illustrates the lack of representation of people with disabilities in the media. While disability plays a major role in Mairs’ life, she points out the various ways her everyday life is ordinary and even mundane. Despite the normalcy of the lives of citizens with disabilities Mairs argues the media’s effacement of this population, is fear driven. She claims, “To depict disabled people in the ordinary activities of daily life is to admit that there is something ordinary about the disability itself, that it may enter anybody’s life” (Mairs 14). Able bodied people worry about the prospect of eventually becoming physically impaired.
It is an opportunity to talk about characters with disabilities and how they are portrayed in
Growing up with a cousin who is visually impaired, Amit, would often tell me about times he was mistreated because of his disability. Regardless of unfair treatment, Amit always tried to keep an optimistic attitude and would not let it bother him. One day, we were out with some friends and while walking to dinner, Amit told the entire group that it was time to cross the street. “How would you know. You can’t even see,” Shawn said from the back of the crowd.
The media portrays individuals with disabilities in a variety of ways, most coverage is positive. However, just like everything else, media reports can be negative. I read an article titled Zoo Proves Transformative for Teen with Severe Disabilities by Ted Gregory. He focused on both her disabilities and abilities along with the controversy surrounding whether or not human-animal interactions can be helpful. The article was written as a “feel good” article about how individuals with disabilities can lead successful lives along with finding the right placement that encourages and focuses on their abilities can be successful.
Hershey feels that there is evidence in society that the majority feel that people with disabilities need to be “fixed” or “cured”. Hershey also feels that the majority feel that the problem should just “go away”. The passage that best supports this, she goes on to say “one of my major objections to the telethon is the way it reinforces that attitude.” Hershey goes on to explain that some people with disabilities keep quiet instead of demanding their basic human needs to be met. I was struck by Hershey stating “we’ll never recognize them if we stay focused on curing individuals of disability, rather than making changes to accommodate disability into our culture.”
Additionally, there is a lack of representation and diversity within the disability community in media. People with physical disabilities are often overrepresented compared to those with intellectual or developmental disabilities, for
Saniya Shah Professor Gehring LGST 173 8 June 2023 The Negative Portrayal of Down Syndrome in Glee (677) Society’s perception of disability is influenced by many things, but perhaps the biggest influence comes from the media and its poor portrayal of people with disabilities. A journal article, Deconstructing Disability: Three Episodes of South Park, indicates that 99 percent of American households have at least one television set, indicating that the media we consume shapes our understanding of the world. As a result, the media constructs reality instead of reflecting it, thus creating and fueling harmful stereotypes (Reid-Hresko and Reid, 2005). The alteration of reality through the media and the negative portrayal of people with disabilities
Disabled people are people who have mental or physical limitation so they depend on someone to support them in doing their daily life needs and jobs. Although disabled people are a minority and they are normally ignored, they are still a part of the society. The statistics show that the proportion of disabled people in the world rose from 10 percent in the seventies of the last century to 15 percent so far. The number of handicapped exceeds a billion people all over the world, occupied about 15 percent of the world's population, as a result of an aging population and the increase in chronic conditions such as diabetes, heart disease, blood and psychological diseases that are related with disabilities and impairments. Every five seconds someone
