Since she was eight months old, Maya Rose has been struggling against the restraints of a chronic disease. Today, Maya is a cute and much loved eight-year-old girl, but sadly her life is anything but average for a child in New York City. Unlike most other girls her age, Maya struggles with tasks like moving on her own and communicating, and her child development trajectory is much different from her peers in Queens. In fact, Maya has never walked or spoken. But unlike other young children dealing with chronic disease, there isn’t any name yet for what Maya struggles against, and her life has been changed forever by an unknown illness. The Maya Rose Project aims to change that.
As a single parent and Maya’s primary caregiver, her father Alex Dwek has been by Maya’s side her whole life. Together the two have visited every type of specialist imaginable in the New York, New Jersey, and Philadelphia areas. But while New York City has some of the best doctors in the world, no one has yet been able to help Maya and Alex learn what chronic disease this young warrior suffers from.
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The Maya Rose Project aims to help Alex and Maya find an answer to what unknown illness plagues the young girl, but their research and quest could help uncover answers that every family struggling with a chronic disease could learn